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As a result of collaboration amongst the various decision-makers in the field of healthcare, there has been an improvement in the access to healthcare and living conditions globally. Nonetheless, poorer communities continue to benefit the least from public investment. To bridge the gap, self-care can be a viable alternative as it allows individuals and communities to reduce their dependence on government healthcare solutions. Barriers to self-care do exist. Some of these are cost effectiveness, usability of self-care instruments, differentiated strategies and linkage to care. In identifying these obstacles, it is also worthwhile to investigate how they can be mitigated. To encourage sustained self-care in the HIV continuum, contextual factors as well as the manner in which individuals and communities engage with self-care must be considered. In South Africa, multiple variables come into play: literacy levels, cultural influences, socio-economic conditions and access to resources are some of these. Evidence demonstrates how self-care can be promoted by various stakeholders re-strategising to tweak and in some cases totally change existing structures. This paper explores some of the transformations, like at a governmental level where the supply of HIV self-testing kits is increased, at a production level where instructions for use are reformatting, in communities where sports programmes fulfil the dual purpose of developing sport skills and providing HIV education concurrently, and at an individual level where greater awareness invites greater participation in self-care. While self-care is a promising proposal, it is not a replacement for traditional health-care practices, but a complementary approach
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The 1978 Alma-Ata declaration (
The WHO defines self-care as “the ability of individuals, families and communities to promote health, prevent disease, maintain health, and to cope with illness and disability with or without the support of a healthcare provider” (
In South Africa, the need for self-care is becoming increasingly apparent. Patients seeking care have frequently not been able to receive it due to service-delivery shortfalls (
In South Africa, healthcare coverage particularly in relation to HIV and Tuberculosis declined in some regions due to COVID care taking precedence over routine health services (
The self-care matrix (SCM).
While the functional approach to increasing access to healthcare is to reduce its cost, it should not compromise the quality of healthcare (
Because of the nature of self-care interventions like self-monitoring, or self-screening, people expect such interventions to provide them with immediate or direct benefits (
Furthermore, patients who opt for self-care, can often obviate their transport costs and needing to visit hospitals for HIV related care (
Various reports estimate large cost savings from self-care, however, whether all patients are able to care for themselves competently independently of a healthcare worker must be considered.
Self-care interventions play a pivotal role in the prevention, identification, management, treatment optimisation, and decreasing disease incidence (
Independence hinges on the end user being able to comprehend instructions for the use of medication and instruments (
To combat the pre-requisite of being literate for a person to be able to adopt self-care, methods of information dissemination that go beyond the written word, such as videos, need to be employed (
Compared to people without HIV, people living with HIV (PLHIV) find themselves twice as likely to be at risk for cardiovascular disease (CVD) and their mortality risk increases if the CVD risk is left unmitigated (
On a systemic level, digital health platforms provide further solutions to promote self-care, as these also have the advantage of allowing patients to monitor (
Irrespective of how encouraging these interventions are, overcoming the current obstacles to its uptake needs more robust efforts to mitigate the costs and practicalities associated with establishing e-/ telehealth pathways (
Among the variables which influence an individual's willingness to embrace self-management of their health, are the intersectionalities of culture, sex, gender, age and class (
Differentiated care support needs to expand, to address the additional self-care activities required for effective self-management of chronic conditions. Some of these additional interventions include education and community engagement to promote behaviour and lifestyle modifications (
Health education is pivotal in promoting healthy life-styles, encouraging individuals to take accountability for their health (
However, society does not only have to rely solely on directives from health authorities in how to manage their health. Malama K et al. (2022) explain that ensuring that communities have adequate education on HIV self-care practices as well how to avail such, can play a significant role in promoting HIV self-care (
Knight L, et al. (2018) suggest the formulation of
On a more individualised level, differentiation can also take into consideration the cultural (
Thus it is important to understand all enabling factors that help or disturb self-care behaviours and strategize ways in which to mitigate them. In doing so, deep-rooted behaviour and attitudes which are detrimental to health and self-care may be able to be changed.
Policy makers, implementers and governments should also consider fostering collective healthy living through community exercise sessions (
Linkage to care is a self-management intervention which offers strategies that promote active participation of individuals in their health, and ways to reach improved outcomes like increased access to testing (
The term “linkage to care” was first coined to define a patient's initial clinical visit, following an HIV positive, and most recently, reactive self-screening result. It is regarded as a crucial step in the management of HIV and viral suppression (
Evidence points to financial constraints and time needed to access health facilities, patient and provider relationships (
While various initiatives such as mobile health clinics (
Limited access to the internet, language barrier and in some instances, infrastructural resources such as mobile health cars can pose limitations to these recommendations, particularly in poorer countries.
The integral role that self-care plays in empowering lay people to assume responsibility for their own health has been advocated as a method to mitigate non-communicable diseases (NCD) (
A key driver in self-care decision making is the financial implications at personal and institutional levels. There is an acknowledgement that access to health insurance plans have a positive impact on a patient's inclination to enter into self-care (
Apart from economic concerns, in South Africa for example, one of the barriers to linkage to care in HIV patients is that while patients are willing and able to collect medication from alternative facilities like community based ones, the lack of interface with health workers resulted in patients being more reluctant to visit these facilities (
Creating awareness related to one's health is an integral part of self-care, and one study postulates that awareness of the indications of having contracted HIV plays the most powerful role in whether an individual links to care (
While the self-care interventions discussed in this paper are drawn from the lessons learned from HIV and/or COVID-19, the paper points out common issues about self-care that are relevant to other health conditions, such as Diabetes (
Self-care interventions will not work in isolation and should not replace traditional, conventional healthcare. Further research is required to understand how best to link self-care practices to service delivery in facilities. Therefore, to bridge the gap between self-management of disease, treatment, and support, policy makers and governments should consider how linkage to care can be facilitated.
To reimagine health systems that can withstand pressure from growing health concerns, a portion of healthcare must be patient-led, and self-administered. However, while self-care interventions are an important aspect of healthcare provision, and can address some barriers, such as waiting times, privacy, confidentiality and cost, self-care practices do not negate the need to visit a health facility for further management.
The original contributions presented in the study are included in the article/Supplementary Materials, further inquiries can be directed to the corresponding author/s.
Conceptualization was done by AN. First drafts were written by AN, SN, TJ and SG. AN and LS proof-read and edited the manuscript. All authors contributed to the article and approved the submitted version.
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
All claims expressed in this article are solely those of the authors and do not necessarily represent those of their affiliated organizations, or those of the publisher, the editors and the reviewers. Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher.